Spinal Cord Injury and Disease Resources

Categories: General Resources Treatment Centers/Rehabilitation Research for Treatment/Cure Bulletin Boards/Chat Newsletters/Magazines Articles/Pamphlets Point of Care, Team Information System NSCIA Factsheets Books to Buy! Email List Groups Other

General Resources

• American Association of Spinal Cord Injury Nurses
• American Association Of Spinal Cord Injury Psychologists And Social Workers
• American Paraplegia Society
• American Paralysis Association
• American Spine Injury Association (ASIA)
• Apparelyzed - Spinal Cord Injury Peer Support
• Canadian Paraplegic Association
• Christopher and Dana Reeve Paralysis Resource Center is a national clearinghouse for information, referral and educational materials on paralysis and spinal cord injury.
• Consortium for Spinal Cord Medicine
• The Healthy Gimp - disability & spinal cord injury information
• InjuryBoard.com - Spinal Cord Injury Resource
• National Spinal Cord Injury Association (official site)
• NSCIA - Greater Boston Chapter
• National Spinal Cord Injury Association of Illinois
• Paralyzed Veterans of America
• PushToWalk
• Rick Hansen Institute
• RVL S.C.O.R.E. International--A not-for profit organization that assists paralyzed individuals
• Shake-A-Leg
• Shake-A-Leg-Miami
• Spinal Cord Injuries Australia
• SPINALCORD Injury Information Network
• Spinal Cord Injury Manual for Patients and Families
• Spinal cord injury resource center
• Spinal Cord Society
• Syringomyelia Facts
• Tetraplegic Living - Living Life in a Wheelchair
• The QUAD LINK
• The Spinal Cord Information Pages - Your one stop site for all SCI information!
• The Spinal Cord Injury - For Your Information (SCI-FYI) Resource Guide
• The SCI Zone .com - The Spinal Cord Injury Zone!
• The Steadward Centre for Personal & Physical Achievement. (was Rick Hansen Center)
• World Spine Society | Spine Resources

• California Back Specialists
• Kessler Rehabilitation Corporation
• Madonna Rehabilitation Hospital
• Magee Rehabilitation - Philadelphia
• Mt. Sinai Medical Center Rehabilitation Medicine
• National Rehabilitation Information Center
• New England Regional Spinal Cord Injury Center
• Pushing Boundaries | Intensive exercise therapy for people with spinal cord injuries and other forms of paralysis | Redmond, WA
• NW Regional Spinal Cord Injury System - Spinal Cord treatment center
  
• Rehabilitation Institute of Chicago
• Spine and peripheral neurosurgery at Mass. General Hospital
• The International Spinal Injuries & Rehabilitation Centre
• Topics in Spinal Cord Injury Rehabilitation

Research for Treatment/Cure

• American Paralysis Association
• CenterWatch Clinical Trials Listing Service
• Christophe Reeve Paralysis Foundation
• Claire E. Hulsebosch, PhD - investigating the mechanisms of recovery after spinal cord injury
• Cleveland FES Center - Restoring Function through Electrical Stimulation
• CORD: Collaboration on Repair Discoveries
• Cure Paralysis Now
• Kessler Research
• Project RESTORE
• Restorative Therapies
• Reeve-Irvine Research Center
• Spinal Cord Research Centre
• Spinal Cord Society
• Spinal Cord Workshop from the Bedford Stem Cell Research Foundation
• Spinal Research  -  a cure for paralysis from spinal cord injury
• The Miami Project to Cure Paralysis
• The Myelin Project is a non-profit organization engaged in research to find a way to repair myelin as soon as possible.
• Translational Pain Research at the Brigham and Women's Hospital
• Why Bush's stem-cell policy is reasoned — and why it's working
  

Bulletin Boards/Chat

• CareCure for the spinal cord injury community
• National Spinal Cord Injury Association
• Quad Central
• Cure Paralysis Chat Forums
• Arizona Spinal Cord Injury Support Group
• Disability Chat Links
• #disabled Channel on Newnet IRC
• MGH Neurology - Neurology Web-Forum
• MSN DisAbilities Community
• CompuServe's Disabilities Forum

Newsletters/Magazines

• Spinal Cord Injury Update
• New Mobility Magazine
• New Horizons Newsletter
• Paralinks Electronic Magazine
• Electric Edge

Articles/Pamphlets

• Assist Cough in SCI
• Autonomic dysreflexia
• CNN - Hand implant gives quadriplegics new grasp on life - August 18, 1997
• Cure Paralysis Now's FAQ
• Spinal Cord Injury Forum Reports
• SCI Informational Pamphlets
• Spinal Cord Injury Workshop -- table of contents
• Spinal Network: The Total Wheelchair Resource Book

University of Miami/Rehab Team Site

• RehabTeamSite
• SCI Manual for Patients and Families
• Automatic Dysreflexia (Hyperreflexia)
• Bowel Program in SCI
• Feelings and Reactions in SCI
• Home Safety and Modifications
• Other Complications of SCI
• Sexuality in SCI
• Skin Management in SCI
• Support Groups, Organizations, Research Centers, and Resources in SCI
• Urinary Tract Management in SCI

NSCIA Factsheets

• #1 - Common questions on SCI
• #2 - SCI Statistics
• #3 - Sexuality after SCI
• #4a - Choosing a Rehab. Facility
• #4b - CARF & NIDRR Rehab. List
• #5 - What's New in SCI Research?
• #6 - The Importance of Basic Science in Research
• #7 - Tendon Transfer Surgery to Restore Hand Function
• #8 - SCI Awareness, The Importance of Language
• #9 - Functional Electrical Stimulation
• #10 - Male Reproductive Function after SCI
• #11 - What is a Physiatrist?
• #12 - Facilities and Resources for Vent Users
• #13 - Reading Resources
• #14 - Resources for Pediatric SCI
• #15 - Travel After SCI
• #17 - What is Autonomic Dysreflexia?
• #18 - Starting a Support or Discussion Group

Books to Buy! Available in association with Amazon.com

• Biographies & Memoirs
  • The Best Seat in the House: How I Woke Up One Tuesday and Was Paralyzed for Life
  • Nothing Is Impossible: Reflections on a New Life by Christopher Reeve
  • Spinal Cord Injuries (Diseases and People)
    
  • Living With Spinal Cord Injury
  • "Still Me" by Christopher Reeve
  • Able Lives : Women's Experience of Paralysis
  • Back Talk : Teaching Lost Selves to Speak
  • Don't Worry, He Won't Get Far on Foot
  • Eleven Seconds : A Story of Tragedy, Courage & Triumph
  • Fourth and Long : The Kent Waldrep Story
  • Inside the Halo and Beyond: The Anatomy of a Recovery
  • Journey to Well: Learning to Live after Spinal Cord Injury
  • Meaning of a Disability : The Lived Experience of Paralysis
  • Miracles Happen : One Mother, One Daughter, One Journey
  • Moving Violations : War Zones, Wheelchairs, and Declarations of Independence
  • My Soul Purpose : Living, Learning, and Healing
  • Rescuing Jeffrey: A True Story
  • Staring Back : The Disability Experience from the Inside Out
  • Stephen Hawking : Revolutionary Physicist
  • The Body Silent
  • Waist-High in the World : A Life Among the Nondisabled
  • Will the Real John Callahan Please Stand Up? : A Quasi Memoir
• Health, Mind and body
  • Life on Wheels : A Guide for the Active Wheelchair User (read reviews)
  • Personal Health History: Spinal cord injury
  • Is Fred Dead? A Manual on Sexuality for Men with Spinal Cord Injuries
  • Choices : A Guide to Sex Counseling With Physically Disabled Adults
  • Enabling Romance; A Guide to Love, Sex, and Relationships for People with Disabilities (And the People Who Care about Them)
  • Endless Struggle : Spinal Cord Injury
  • Female Sexuality Following Spinal Cord Injury
  • How to Live With a Spinal Cord Injury
  • Illustrated Manual of Sex Therapy
  • Journey to Well : Learning to Live After Spinal Cord Injury
  • Sexuality of After Spinal Cord Injury : Answers to Your Questions
• Medical/Rehabilitation
  • Spinal Cord Injury : A Guide for Living (Johns Hopkins Press Health Book)
  • The Spinal Cord Injury Handbook for Patients and Their Families
  • Aging With Spinal Cord Injury
  • Back and Neck Disorders Sourcebook : Basic Information About Disorders and Injuries of the Spinal Cord and Vertebrae, Including Facts on Chiropractic)
  • Catastrophic Injuries in High School and College Sports (Hk Sport Science Monograph Series, V. 8)
  • Diagnosis and Managememt of Disorders of the Spinal Cord
  • Functional Electrical Rehabilitation : Technological Restoration After Spinal Cord Injury
  • Functional Electrical Stimulation : Standing and Walking After Spinal Cord
  • In Search of the Lost Cord: Solving the Mystery of Spinal Cord Regeneration
  • Management of Spinal Cord Injury (Jones and Bartlett Series in Nursing)
  • Nursing Spinal Cord Injuries (paperback)
  • Nursing Spinal Cord Injuries
  • Outcome After Head, Neck and Spinal Trauma : A Medicolegal Guide
  • Pharmacological Approaches to the Treatment of Brain and Spinal Cord Injury
  • Spinal Cord Injuries in Children
  • Spinal Cord Injury : Concepts and Management Approaches
  • Spinal Cord Injury: Functional Rehabilitation (2nd Edition)
  • Spinal Cord Injury : Medical Management and Rehabilitation
  • The Child With a Spinal Cord Injury (paperback)
  • The Management of Persons With Spinal Coryd Injuries

Email List Groups

• Vent-Users List
• Quadriplegic List
• Transverse Myelitis List

• Quadriplegic (Tetraplegic) Discussion Group: This Internet mailing list, called QUAD-LIST, is a forum for quadriplegics (tetraplegics) to communicate with one another. To subscribe to the list, follow the instructions found on the QUAD-LIST web page.

• SCI Mailing List: There is an Internet mailing list on the topic of spinal cord injury, called SCIPIN-L List. To join it, send a message to listserv@health.state.ny.us with only the words "subscribe SCIPIN-L" in the body of the message. (After you join, send all messages to the list to scipin-l@health.state.ny.us, NOT to the address above.)

• MOBILITY SJU Mobility Disablities List. To join, send a message to listserv@maelstrom.stjohns.edu with only the words "subscribe MOBILITY" in the body of the message. (After you join, send all messages to the list to mobility@maelstrom.stjohns.edu, NOT to the address above.)

Other Resources

• Assistive Devices/Products for Independent Living
• Adapted Special Needs Clothing
• Computer Accessibility Products
• Home Automation/Environmental Control
• Exercise Devices/Equipment
• Wheelchair/Mobility Products
• Vans/Transportation/Lifts
• Medical Supplies
• Other Products/Services

• Entrez PubMed MEDLINE & PreMEDLINE Search for Spinal Cord Injury

• alt.med.cure-paralysis -- Cure Paralysis Now (Newsgroup)

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Document: http://www.makoa.org/sci.htm
Last Modified: Monday, 05-Oct-2009 13:49:56 MST